Cystic Fibrosis

One of my Sons (I have three) has cystic fibrosis.  This is a genetic disorder which prevent the cells in his body from dealing with mucus which then is too sticky and hard to dispel from his lungs and other organs.  This mucus then becomes a seat for infection and causes the destruction of tissue.

My Boy has worked long and hard to keep CF at bay (He's now just short of 36) but the last decade has seen a steady decline in his lung function to a present low of 15%.  In the last 15 months he has contracted pneumonia twice and on each occasion spent two weeks in hospital on antibiotics.

He returned home from his last hospital stay two weeks ago but his health has suffered a serious setback.  He has told me he is 'not long for this world' and is very withdrawn and quiet. His life is empty and consists of sleeping, inhaling antibiotics via a nebuliser, eating a little and sometimes watching some television.

He is very tired and sometimes does not have the strength to climb one flight of stairs.

He is despondent and sad.  So am I.